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1.
Tumori ; 108(5): 512-516, 2022 Oct.
Article in English | MEDLINE | ID: covidwho-2064525

ABSTRACT

This article describes a creative project undertaken by a group of adolescent and young adult patients with cancer as part of the Milan's Youth Project, a scheme dedicated to young patients with cancer with the dual aim of optimizing medical aspects of their care and promoting a holistic approach to their needs. The project was based on audio recordings and focused on the theme of "the journey," such as a holiday or an adventure, or as a metaphor of the cancer experience. The podcast installments were published on the main streaming platforms. Talking about their disease and how they feel is of importance for young patients to process their feelings surrounding the cancer experience and to find the inner resources they need to facilitate coping.


Subject(s)
Neoplasms , Adaptation, Psychological , Adolescent , Emotions , Humans , Neoplasms/therapy , Young Adult
2.
Qual Life Res ; 31(4): 1105-1115, 2022 Apr.
Article in English | MEDLINE | ID: covidwho-1368509

ABSTRACT

PURPOSE: The coronavirus 2019 (COVID-19) pandemic has had profound consequences also for non-infected patients. This study aimed to evaluate the impact of the pandemic on the quality of life of a population with hereditary gastrointestinal cancer predisposition syndromes and on the surveillance/oncological care program of patients enrolled in a dedicated registry. METHODS: The study was conducted by means of an online self-report survey during the first Italian national lockdown. The survey comprised four sections: demographics; perception/knowledge of COVID-19; impact of the COVID-19 pandemic on surveillance and cancer care; health status (SF-12 questionnaire). RESULTS: 211 complete questionnaires were considered. 25.12% of respondents reported being not at all frightened by COVID-19, 63.98% felt "not at all" or "a little" more fragile than the healthy general population, and 66.82% felt the coronavirus to be no more dangerous to them than the healthy general population. 88.15% of respondents felt protected knowing they were monitored by a team of dedicated professionals. CONCLUSION: Patients with hereditary gastrointestinal cancer predisposition syndromes reported experiencing less fear related to COVID-19 than the healthy general population. The study results suggest that being enrolled in a dedicated registry can reassure patients, especially during health crises.


Subject(s)
COVID-19 , Colorectal Neoplasms , COVID-19/epidemiology , Communicable Disease Control , Humans , Pandemics , Quality of Life/psychology , Registries , SARS-CoV-2 , Surveys and Questionnaires , Syndrome
4.
J Adolesc Young Adult Oncol ; 9(3): 453-454, 2020 06.
Article in English | MEDLINE | ID: covidwho-633806

ABSTRACT

After the video tutorials created a few months ago and published in the Journal of Adolescent and Young Adult Oncology, Milan's Youth Project young cancer patients decided to record another video: a "special issue" dedicated to the coronavirus disease 2019 pandemic. The video addresses critical issues of the social isolation imposed by the lockdown and the fear the patients face in addition to their actual worries related to the disease. When many people across the world are forced to social distance for the imposed lockdown, the positive attitude and the advice of young cancer patients who experience social isolation regularly may be of great support and a fine example.


Subject(s)
Betacoronavirus , Coronavirus Infections/epidemiology , Adolescent , COVID-19 , Humans , Pandemics , Pneumonia, Viral , SARS-CoV-2 , Young Adult
5.
J Adolesc Young Adult Oncol ; 10(3): 346-350, 2021 06.
Article in English | MEDLINE | ID: covidwho-720926

ABSTRACT

The article describes how adolescents with cancer utilized an artistic approach to discuss about their social isolation caused by disease and treatment. With the help of professionals, 17 young patients closed in their isolation room described their ideal room (a bit real, a bit of a fantasy place) producing texts and images, subsequently put together into a book. In these days when people are forced to social isolation by the lockdown related to corovavirus disease 2019 pandemic, young patients teach us meaningful life lessons: how social confinement can become an opportunity to focus on yourself, and what is really important in life.


Subject(s)
Art Therapy , COVID-19 , Neoplasms/psychology , Social Isolation , Adolescent , COVID-19/epidemiology , Emotions , Female , Humans , Male , Pandemics , SARS-CoV-2 , Young Adult
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